The Eye of the Beholder

Discussion Questions

  1. Although we only have glimpses of the actual conversations between parents and professionals in this case study, how well were these handled by the project staff? Did they exemplify the principles of family-centered care? Would you have taken a different approach in any of the conversations?
     
  2. This program's approach to enrolling new children was to conduct an initial home visit followed by a visit by the family to the classroom. How important were each of these steps and could they have been conducted in a different order? Which staff members should be involved in the various stages of the enrollment process?
     
  3. How important do you think the daily communication with the mother was when she brought Jessica into the classroom each morning? If the center provided transportation, how might the staff maintain ongoing communication with Jessica's parents?
     
  4. The story doesn't describe efforts to prepare the other children and their parents for the enrollment of a child who has complex medical needs and is dependent upon mechanical life support. Is this important? If so, how would you go about this?
     
  5. Anne and Maria determined that there was no reason to exclude a child with CMV from their classroom program. Even so, who has the right to know if Jessica is shedding the CMV virus? Would the situation be changed if Jessica was HIV positive, had AIDS, or was infected with the herpes virus?
     
  6. How effectively do you think Maria and Anne handled the difficulties they encountered in getting the care providers to incorporate therapeutic interventions into the daily routines and to fully include the children with disabilities?
     
  7. This case study describes a program that used a transdisciplinary consultation model for developing and implementing therapeutic interventions. What other methods or models might be used? What would the advantages and disadvantages of each be?
     
  8. Which elements of early intervention must to be in place to make a child care center an acceptable placement for a child with disabilities? What level of technical support and supervision is necessary?
     
  9. What policy issues, funding, legal, or ethical issues are raised in considering typical child care centers as intervention sites for children with disabilities?


The Eye of the Beholder Case Story

    


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